Feel better today for whatever reason. Taste, too. Maybe it was just overwhelming allergy snot?
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interesting study on returning to exercise after covid infection - specifically recommendations around avoiding the long covid link between too-early exercise after infection. Rec is:
Only return to exercise after at least seven days free of symptoms, and begin with at least two weeks of minimal exertion
Blog post from ACSM too
Safe Return to Physical Activity After COVID-19
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Well I wish someone had told me this before I tried to exercise
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Yea I did 10 hours of exercise in the last week since I recovered from Covid. I didnāt find it challenging but apparently that isnāt really an indication of risk for long covid.
And now I am positive again. Wish I had known this before.
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Ok reading those made it a little less scary. Itās basically like ātake it slow and ramp up, donāt jump in right where you were and make sure youāre gentle with yourself.ā
Iām having some muscle pain (Iām pretty sure) in places usually donāt, and Iām still coughing a little so Iām kind of freaked out about long covid and trying to convince myself Iāll be fine.
And I did a long day with a long bike ride (e bikes that I used generously but still) and definitely coughed a lot more the next two days
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I did over 3 hours of exercise (skating) per session including double jumps, and I biked 24 miles RT to the rink. So feeling real dumb right now. Well, just uninformed. I felt fine but now I am positive again so. Great.
This is also how I feel about taking my immunosuppressant on Monday. I was starting to get RA issues again, and youāre not supposed to take an immunosuppressant until you are done with an infection but that marker is undefined. 3 days of negative tests seemed fine to me. No one has any data on when to take it again.
(For any mandatory reporters, I did report the adverse event of the paxlovid rebound to both enbrel and Pfizer so donāt worry.
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You are awesome
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I called the nursing/drug safety line for my medication to ask āhey, do you have any guidance on when it is safe to take my immunosuppressant again after a covid infection because I took it after testing negative for three days and now Iām positive againā and they were like ālol nope, call your doc to askā
and my doc was like āI dunno?? When you feel better?ā And I was like āthatās what I did last time and now Iām positive againā
Hereās my question: How does the maker of a 4.3Billion dollar drug not have any guidance on when to time your immunosuppressant dose after recovering from Covid infection when we are 2 years into this pandemic?
Is the sample size not large enough?
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Sample size low, liability high? 
I would guess.
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how is the sample size not large enough?? the number of people that have had covid, combined with the subset of people that take the second-most prescribed RA drugā¦itās justā¦this is ridonk. They have to do all sorts of safety studies. I genuinely donāt understand how they donāt have rec on when to resume taking their drug after infection with a disease that has infected half a billion people.
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Yeah but, cases that COULD present data versus cases that DID provide data are verrry different circles, sadly (ie, what data did they capture). I absolutely agree they SHOULD have recommendations. I can just see how they donāt, sadly.
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As I understand it, drug studies are pretty clearly defined (Phase 1-3), with clear control groups, metrics, double blind, etc. The kind of study they would need to do do in this case is extremely different. How do you collect data, verify anything, draw conclusions from a huge batch of basically anecdotes? I imagine they have far more liability if they publish guidelines than if they donāt. And there is no profit motive for them to do this work and take the risk. I think clinicians who are on the front lines with patients are more likely to provide recommendations.
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Youāre right but I am still absolutely over this, as a patient I am left guessing, worried I will trigger either a disease flare up or a Covid rebound. Thereās just too much pressure put on patients to understand the underlying mechanisms.
Also you think with all the patient contact they have due to manufacturer assistance and the mandatory adverse reaction reporting there would be some kind of data
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I agree they could and should do better. Or health care system leaves much to be desired.
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Hey, does anyone have some good, informed pieces on how we get out of this pandemic at this point? With the current variant and vaccines not really allowing for long lasting immunityā like, is there ever a new normal? I cannot imagine we ever have large scale lockdowns again because I donāt think the economy could survive it. So what the heck does a new normal look like.
Friend was trying to propose that eventually all high risk activities will go away like indoor smoking did. That seems completely infeasible to me because I cannot imagine a future without any indoor dining, indoor gyms, indoor singing worship services. Like not everyone lives in SF like him where outdoor activities are feasible year round.
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Like it just seems to me weāll continue to spread it around and people will keep getting it if vaccines and infections donāt equal herd immunity
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I meanā¦ not to be a pessimist but it seems like this to me too.
Unless a variant proof vaccine is developed, maybe? I donāt have the science smarts to know whether that is possible.
Agree with you that high risk events will not simply fade away because that means few to no events in cold climates for months out of the year. Which also would be a hit to the economy.
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Iām pretty sure there was a recent NYT piece, or maybe WaPo, because those are pretty much what I read, to that effect. Itāll be like the coronaviruses that cause colds - weāll just get it every year, or maybe three times/year. Or, maybe a worse variant will pop up.
I think there is a zero chance that indoor activities will die out because most places are paying very little attention to it already. We had a visitor at church this morning who was utterly shocked that we required masks.
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I saw an article on this recently, wish I had saved it. Basically they (whatever experts they were quoting) estimated people would get it around every 3 years, roughly the same cycle weāre on as seasonal flu (apparently most people get 3 flus per decade?) and weāll justā¦ treat it like flu, essentially. Deadly for vulnerable people, mainly ignored by society, tracked by epidemiologists.
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Ha same, totally referencing the same article there.
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