I thought we could start a group journal/group thread about chronic illness and/or disability and money. If you’re interested in joining in, post here. You can share your story, ask questions about things like health insurance, disability insurance, or just rant about things related to chronic illness/disability and money.
My story: I have Rheumatoid Arthritis, which used to be really bad. All through college I had disability accommodations that meant I got a notetaker in class since my hands couldn’t hold a pen. After the ACA passed, I was finally able to get health insurance (due to pre-existing conditions/crappy jobs without insurance, I never before had the option) and after like 2 years of trying, we finally found the right drug that makes me 95% symptom free. I’m never going to like, do needlepoint, but I can hold a pen for maybe ~15 minutes now! I don’t usually fall asleep at random intervals from fatigue! Plus, my internal organs aren’t breaking down. Yay!
The drug I’m on is a bit scary because it’s $3000 a month, but that is mostly covered by co-pay assistance from the drug company. That means I hit my OOP max in March each year, and the rest of my health care is free. Yay! I’m generally terrified that the ACA will go away since I get my health insurance through the exchange, and I’m increasingly concerned that pharma co-pay assistance will get struck down by anti-trust laws (currently moving through the courts). Plus, you know, the lingering cancer risk of taking an immunosuppressant every week.